New Publications

The Supplement to Seminars in Hematology on the 5th Intercontinental Cooperative ITP Study Group (ICIS) Expert Meeting in Flüeli-Ranft, Switzerland, September 2015  is now available online

Guido Fanconi Award 2015 for Paul Imbach

It is a pleasure to inform you that Paul Imbach received the Guido Fanconi Price at the Annual Meeting of the Swiss Society of Pediatrics in June 2015 for his achievements in pediatric hematology and oncology.This Price is awarded for distinguished clinicians and scientists who have made a major contribution to our understanding of an area that relates to pediatrics. Paul Imbach was honored for the detection of the effects of intravenous immunoglobulins and for his long-lasting engagement in pediatric hematology and oncology.

Introductory on ICIS

The Intercontinental Cooperative ITP Study Group (ICIS) was founded in 1997 by physicians in the field of hematology to analyze the multiple diagnostic and therapeutic aspects of acute and chronic childhood Immune Thrombocytopenic Purpura (ITP). There are many questions, such as the natural history of childhood ITP, which need to be clarified as well as questions concerning diagnosis and therapy of ITP, such as the identification of early predictors of chronic ITP.

ICIS provides a long-term concept for prospective studies and new, evidence-based definitions of ITP by worldwide cooperation of physicians. Within 9 years, over 500 physicians from over 60 countries have participated or are participating in ICIS projects, and over 4'300 patients have been registered anonymously.

Registry results and future projects are discussed and analyzed at regular meetings (American Society of Hematology, American Society of Pediatric Hematology/Oncology, European Society for Pediatric Hematology and Immunology, Internationals Society on Thrombosis and Haemostasis, European Hematology Association and others) and State-of-the-Art ITP Expert meetings.

How can my patient be registered?

PARC-ITP Registry

since 2004
Pediatric and Adult Registry on Chronic ITP,
with side studies (in preparation) on Genetics, Severe Bleeding, Quality of Life, Refractory and Secondary ITP)

sign up

Registry II

since 2002
Severe Bleeding

Closed 2007. Follow-up data may still be submitted.

Splenectomy Registry

since 1998

sign up

Registry I

1997-2002

publications

» PARC-ITP Registry: Download Protocol


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